breast cancer experience story: and yet came in the liver and in total remission of metastasized lymph nodes recurrence of familial breast cancer (BRCA1 and BRCA2) by dendritic cell therapy and hyperthermia in addition to Femara. Then came yet again relapse, but now they chose for chemo plus additional vitamins and minerals, and this combination has worked well and they showed clinical cancer free. Zotgt Evarolimus for stable normal tumor values. Article update 5 april 2012
5 april 2012: Jacqueline her tumor markers are very light on she told me when I was visiting at her. Therefore remains very exciting. But goes very well with her and quality is her life just fine.
24 February 2011: the tumor values remain stable emerges from new research. Jacqueline has had flu, but recent weeks have a hefty thereof is she recovers well again. And so it appears to have had no effect on her tumor values that fall within the normal range and stable. Jacqueline used so now only everolimus plus a number of nutritional supplements through arts-biologist Drs. e. Valstar. Meanwhile however they very well with this.
3 January 2012: because her tumor markers still back to incur Jacqueline were in consultation with her oncologist in late november, she immediately started with everolimus. And prove the tumor markers stabilized after a month. Jacqueline told me that although the scare tumor markers that she was with that ascending bodily actually feels pretty good. She knows that she has, but she notes further familial breast cancer actually not there so much of it. She does have on the advice of her doctor-dietary supplements-list adapted before they Valstar biologist with everolimus began.
13 november 2011: and again pointed out that everything is fine at Jacqueline research. Tumor markers normal etc. Nice news.
11 October 2011: Jacqueline called me yesterday and told that also a petscan has shown that there is no activity in her body. So a super result. Jacqueline is so now really clinical cancer free. Thanks good information and own search work and the right choices for optimal support with, among others, certain voedingsuppletie and on time stop the trade name Avastin. Her oncologist was very happy for her but also very surprised. He had never expected and is amazed the way Jaqcueline has undergone hair treatments. So much better than other women where Jacqueline started right.
29 september 2011: Jacqueline stopped the chemo and the end of August there is a scan last week and who scan was quite positive. All tumors seem gone. Furthermore, all her markers normal. Jacqueline of course super happy. The oncologist keeps its finger on the pulse and of course the event yet again activity can still fall back on development than Jacqueline some cures more with taxol he told her. I think it's really quite nice that she appears to have made the right choice. Has she never heard of Robert Gorter something more after they chose first the chemotherapy. Though she has through arts-biologist Drs. Engelbert Valstar received support with certain non toxic resources. And everything is together with the trade name Avastin stopped them after Jacqueline there rolled through reasonable. With acceptable side effects. And then let's hope that there is no relapse more arise.
23 August 2011: Jaqueline her tumor markers are now sunk to within normal values. It is also getting better with her. It is exciting as she stops in september with the chemo, because what will happen then. But hopefully now also with additional approach as they already Jaqueline does a relapse defer for a very long time.
27 May 2011: last night with Jacqueline called. The tumor markers continue to fall but the side effects were so severe that they in consultation with her oncologist has stopped the trade name Avastin. Yet now she gets every week a lower dose than usual taxol only. Jacqueline remains certain vitamins etc. upon swallowing. She is not dissatisfied and despite the bijwekringen etc. they can reasonably keep standing. But the prospect to do this yet until the end of september must be scared or they so long makes her Smething. She wanted to start again with the first dendritic cells but has postponed this first because they want the chemo.
9 May 2011: the chemo plus has the tumor markers bring down trade name Avastin , but the liver values further pressured. Jacqueline told me she endures the chemo plus reasonable trade name Avastin. She is now become completely bald and has sometimes pain by the livers but it is also to do according to her. This week they start again with dendritic cell therapy three times yet because the prognosis is very bad and they in fact no side more on can. And that her treatment has previously done well.
29 March 2011: Jaqueline has a dramatically bad scan results. Her tumors in the liver geexplodeerd are. Today they talk about yet chemo but it seems that her fight against her hereditary form of Jaqueline breast cancer is going to lose anyway. A second opinion in the VU Amsterdam a few weeks ago, (I was there) was also hugely disappointing. Although there are also wanted in the liver tumors only they do not perform TACE . Jacqueline is probably the victim of a mistake that Dr. Vogl made at the weglaseren of the last tumor remains. Also when I was there and it struck me then that Dr. Vogl misprikte several times. Dr. Vogl said afterwards that he could see where the tumor was not so good because that was so small. Perhaps there is something that still remain and are now seems exploded. Jacqueline is now perfectly on her fate. Also by Dr. Robert Gorter which nothing more himself now the bad with her. I have very very little to nothing to do with her but can help. Unfortunately.
21 February 2011: Jacqueline reveals yet again to have a relapse in the liver. Or it is in the liver never comeback. Now they know not. The rest of her organs are tumor free. Also the bones and lymph nodes are free to assess, as far as this is on the tumor scans. Jaqueline has now begun with Faslodex and does hyperthermia in Amsterdam in Amsterdam Centre the hyperthermia because traveling to Cologne was too much hair. She gets a new scan 22 March a.s.. On the basis of those results will then be further examined what Jaqueline is going to do. She goes in advance see if she can qualify for RFA-Radio Frequency Ablation because the tumors in the liver are all not exceed maximum 1.8 cm. According to its Dutch oncologist she comes not eligible for Arterial Chemo-Embolization TACE-Trans because according to this oncologist has Jacqueline despite that on the scans is nothing anywhere to see cancer. Thus while recent studies have proven that TACE followed by RFA or indeed even with breast cancer LITT for prolonged life extension can provide. Jacqueline told me last night that she is so tired of constantly fighting that they again very much suffering from depressive feelings and often stop there but to think to throw down. I hope that Jacqueline yet again the courage to continue fighting because if I see yet despite this dip outsider still plenty of opportunities for her. Certainly because the tumors confined to the liver.
11 november 2010: video is put online click here for video link
Jacqueline was confronted with a relapse in August 2009 with uitzaaiïngen in the liver and lymph nodes of hereditary breast cancer where she had been treated earlier in 2002. Jacqueline has been working for years on a oncological Department of a hospital and felt not so much for chemo. Instead, they chose, for, in addition to the dendritic cell therapy Femara in combination with hyperthermia (fever therapy). Already in January 2010, after 4 months in a scan showed that handle, 5 4 of the tumors in the liver had disappeared and the lymph nodes were clean. Eventually the last tumor has Jacqueline from the liver at Dr. Vogl with RFA-Radio Frequency Ablation, let get away and became clinical cancer free.
Click here to read the transcript of texts of the video. A wonderful story of someone who knows from experience that cancer is good to let your good inform and on that basis to make a choice wherever you can stand behind and you feel well with yourself.
Jacqueline comes in total remission of metastatic lymph nodes in the liver and hereditary breast cancer
Jacqueline says:
I have had breast cancer in 2002. I am treated with a mastectomy and then I have an additional chemotherapy. And in 2009, August 2009, is discovered that I still had liver metastases and a bump, a metastasis in lymph nodes near the collarbone.
The opinion of my oncologist at the hospital in Netherlands was again starting with hormone therapy, which two years ago was stopped because that according to protocol normally always so goes. And there I am with it started but he also said, we're going to do a scan and if it after 2 months than we have to the chemo has not caught on. And that was something I wanted and I am therefore not actually go look and so I joined Dr. Gorter came and I then received an intake interview, and Yes when I went there just for. That was clear to me.
VO1:
Dr. Gorter supports Jacqueline to postpone the chemo in her choice
Dr. Gorter says:
I never say no to chemotherapy but if it is justified, I say, let's move. Let's do what we do, the local hyperthermia, the dendritic cells and good finger on the pulse and but for 6 to 8 weeks to move. And then see if what we do in the meantime catches on. It is also so, every chemo is immune, immune suppressant, and therefore if we surpressed on the one hand want to improve in the cancer immune the immune system, it is of course also not logical to do something directly at the same time again for a part the effect of the therapy can get beaten.
VO2:
Jacqueline gets varying responses to her choice of dendritic cell therapy, but as a nurse who for years has worked on an oncological Department itself, she knows very well why they chemo refuses. Her family supports its nots here.
Jacqueline says:
There are people who say very good of you. Should you do. And they are indeed there much further than in Netherlands. And there are also people who say nothing at all. And the people who are engaged with the Oncology are bit on the plain. I think not so good because they actually know how they should deal with them, or not enough probably know. I think that is also very important. I think if they deepen that knowledge much more there than erin comes and understand why I have made that choice.
VO3:
Jacqueline start september 2009 with the treatments. She endures this fine, though the fever therapy known as heavy for her because Jacqueline has always had a very low body temperature had.
Jaqcueline says:
I have normally if I am not ill and I have to deal with flu then I have no fever. For me it is 37.5 fever. So I'm not as quick with fever. I have a fairly low temperature, so I sit nearly 2 degrees above the starting value now. So if I did then I'm sick to death or 38.8 37.8, then I'm just as sick as someone who has 40. That has always been. For me this is quite high, proportionately then. And if I get then I sit tonight than that prick when I'm home on 8.6, 8.7. So that's going further up again after that prick of the dendritic cells.
VO4:
Because patients who still fresh in the tumor tissue medical centre, Cologne rarely advance to the injections with the dendritic cells, always a form of hyperthermia applied.
Dr. Gorter says:
If you have cancer cells under stress brings to heat or when they die they by then they are much more visible to the immune system. So that is a very important feature of fever or heating of cancer cells in oncology. And this can give much better that dendritic cells which we perceive cancer cells. We have at about half a percent of all patients who come here can still access tumor tissue. To all the people who come to us is no tumor tissue more and so we vaccinate with naive dendritic cells, which are cells that have not been exposed to the tumor protein of the patient. And yet we have very good experiences. Because even the "theologians" or ", or the" standard of grammomys primed with peptides, which are also often very expensive, or by tumor own antigens, it appears that that without this surgery also works. But then I think, then you need these tumor cells put under very much stress with a form of hyperthermia.
VO4:
January 2010 create a scan and the late Jacqueline rash is hopeful
Jacqueline says:
The liver metastases that were there but Saturdays there are 5 spots on the liver and there are now 4 road. And the spot is now what is also narrowed. And the spot at the collarbone is not on the scan to see more. So that is very favourable.
VO5:
Jaqueline goes through with the treatments and a scan in May 2010 shows that the tumor in the liver shrinks even further.
Jacqueline says:
January has a scan show that there is a lot of improvement was, that a number of spots also were away in the liver. We continued because there is even greater. And now I have that continue and now it turns out that that biggest 4 months, which was something bigger and who is now 1 centimeter. So that's less again, again narrowed. So that is very favourable.
Kees asks: how is your wife?
Aziz says:
Now it is better but at home she is sometimes very depressed and …
Jacqueline says: ...Yes I am often sad
Aziz says: then I save an arm around her, but sometimes, like today, she has a good day, better, but sometimes in 1 time week …. tiresome, exhausting
Jacqueline says:
From my puberty have I suffered from depression. That sits in the family with us. I am very very Saturnine sometimes, not always, but I see very often the negative things, too often. And then I can not turn around to the positive. So then I sit but in those negative spiral. That has to do with which depression that I occasionally have.
VO6:
Because of the tension by Jacqueline who can handle difficult depression have cancer, she goes after consultation with Dr. Gorter, to Dr. Vogl in Frankfurt
Jacqueline says:
There is still a remnant of the metastasis, a small piece and that's going to Dr. Vogl lasering away now. I get no chemo, which they have viewed and lasering is sufficient and in principle it must then all gone. Liver values are normal, tumor markers are sunk. Only that last bit briefly. I feel good too. Everyone says that also against me. I feel good too. I have enough energy, I do everything, so basically …. it is that the doctor says that I have because otherwise I wouldn't even know I guess.
VO7:
Most patients who come to Dr. Vogl have a much larger tumor load than Jacqueline and usually have first chemo needed. Jacqueline is the tumor so small and is very superficial that 1 treatment with laser should be sufficient. Dr. Gorter and Dr. Vogl make use of each other's specialization for years with success. Dr. Vogl treats especially with TACE, a form of local chemotherapy embolization and RFA and LITT, where tumors are removed by laser beams. After these treatments in advance and get patients than at Dr. Gorter in Cologne, a form of hyperthermia.
Dr. Gorter says:
We collaborate since 2002 and our collaboration and experiences have always been very positive. What we do is that patients on their way to Frankfurt we treat them with a local hyperthermia to the area which will be treated. Usually it's the liver. Then they will be treated here by professor Vogl and on their way we treat hyperthermia, bback once more with local sandwhich so that we the treatment of professor Vogl. And our experience is when patients can do this they seem to tolerate even better and it looks like it gives a longer and better benefit. But ofcourse this is an observation. Comparising studies are not done, but our strong impression is a clear and strong benefit to add local hyperthermia.
Prof. Vogl says:
I think the experience we have so doctor Gorter and other farform patients from collegaes, we personally don't perform it, but we have patients who had an additional treatment of hyperthermia and our strong impression is that those patients have a two point improval. First of all in their quality of life, it looks like following the chemo and embolisation life is better. And positive is also the outcome
VO 8: the treatment at Dr. Vogl and weeks later she falls against Jaqueline very still suffer from.
Jacqueline says:
Dr. Vogl so to me that tumor in the liver has engraved. And that went a few times at the time that geberude not good not because he sat on the good place. And therefore I had more pain, more decent and had bruises and napijn that has a week or three who held pain and very slow is that codified. And at this time it is all fine weather and the tumor is gone. So. It's all advance went well. The procedure went on that point painfully anything but the final result is well gone. I'm miraculously restored, or restored, I'm actually fitter than I was for the diagnosis.
VO9: Jacqueline is now clinical cancer free and happy with her choice to have taken no chemo last year. And she is also happy with the support that she always of Dr. Gorter and of her family has gotten. To counteract a relapse remains they do go, despite that they are almost all deductible.
Bas says: she is so there is better again ….
Jacqueline says: with ups and downs
Bas says: Yes with ups and downs, but there you can do nothing. But she gets more energy, she is going to do things again. It is simply getting better. Look but she laughs again, she stands to make delicious food, so yes that is good.
VO 10: Jacqueline finds it regrettable that, despite her own oncologist fine results at her, still very reserved stands opposite the treatments in the medical centre Cologne.
Jacqueline says:
He finds that I myself need to do what I think is good. He also let me free. He also sees to certain results that it goes well. And he also says that I will need to go. But he does not let further on the matter. He doesn't say that it is good therapy. He is not saying that nonsense. He let me in there completely free. And Yes I think that is pretty good. It is just a pity that he did not realise that it is a good therapy. They are not yet as far as the oncologists that they stand behind 100% but I hope that comes soon.
VO 11:
More information on dendritic cell therapy and hyperthermia can be found on the websites of cancer-topical. en and the medical centre Cologne.
